I don't have time for a super long update, but just wanted to ask you to pray today. We will be going to the pediatric gastroenterologist this morning and I am hoping to have some answers soon about what could possibly be going on with our baby girl.
This is my mission for today. To be an advocate for my baby who can't speak up for herself.
Last week at her check up with the pediatrition, things didn't go too well. She has lost some more weight and is only at 15.4 pounds and the dr was pretty concerned. He had us go straight to Valley Children's for some blood tests which was a nightmare in itself. They poked her everywhere and brought in 3 different people to try to draw blood and nothing would come out, so in the end I sat there holding her screaming and sweating while they proceeded to poke her middle finger and slowly catch every drop of blood to fill 2 vials. We actually needed 4, but it had been a really long time already and she was sooo done, so we just got out of there!
Anyway, the blood work came back normal and she is not anemic or doesn't have thyroid issues. Ok, two things checked off the list. What's next?
Well, her pediatrition suspects that Elliana has something called megacolon based on all of her symptoms, but of course he is not the GI expert so now we have been referred to yet another dr. I am just praying that there will be some way to help her to not be in so much pain and to figure out why she has lost almost 2 pounds in 2 months! It's a little scary.
The DR also let us know that she is "Hypotonic" which is basically means floppy. And of course we already knew that by watching her and holding her these past two months and that is one of the reasons I was wanting her to get in for some sort of therapy sooner rather than later. She has global delays and he mentioned some other possible "conditions", but she is moving in the right direction at least- praise the Lord for that!
Once again I thank you for your prayers. Most days I feel as though I am going to explode from all of the things that are pulling at me to get done. I want to do great BIG things for the Kingdom and yet I feel helpless and useless.
But a friend recently remminded me that this is my mission today. That these little choices that I make each day to love and care for my family are adding up to BIG things for the kingdom someday. There are so many unknowns, but I continue to trust that God placed this child into our hearts and our family for a reason and I want to be obedient to whatever reason that is and bring Him glory through it all while growing more like Christ through the process.
That is my true mission and highest calling: To Know Him and To Make Him Known. (hmm now where have you heard that before? :-) )
I'll keep you updated on our sweet Elliana.
A few pictures because I can rarely post without atleast a few :-)
My Mission for Today:
It's a good thing they're cute...